Carson Jost, born with the rare genetic disorder known as Wolf-Hirschhorn syndrome, often recedes into the background. He is unable to walk or talk. His brain’s development stopped after the first year of what has been a 31-year fight for survival.

The parents of this courageous young man, Kim and Wade, are heartened by knowing that Carson has far surpassed the projections of doctors who thought he would live for four years at most. They view their time with him as a gift, no matter how severe the challenges each day may bring, and cherish life with him and his siblings.